July 24, 2017
Just before she turned five months, Lucy Bacott was taken to the hospital. What was thought to be a stomach bug turned out to be much worse: Lucy was diagnosed with high-risk infant acute lymphoblastic leukemia.
Had it not been for a concerned mother taking her child to the hospital and the round-the-clock efforts of doctors and nurses in the first 24 hours, Lucy could have suffered severe organ damage, or worse.
She underwent an aggressive treatment of near-constant chemotherapy for the next year.
Five months after she ended treatment, Lucy relapsed. “Devastated doesn't even begin to describe our feelings,” said Josh Bacott, Lucy's father.
The Bacott's hoped to avoid a bone marrow transplant for Lucy. Prayers were answered when she was accepted into a T-cell therapy clinical trial in Seattle in March 2015. The process proved successful for a short period, but the modified T-cells were deemed no longer active in September 2015. While not a relapse, the likelihood of a relapse was great. After another T-cell infusion failed, Lucy had the bone marrow transplant in December 2015.
In print-form, these words look tough to deal with but anyone who has experienced the severe ups and downs that come with blood cancers – either personally or through a family member or close friend – can tell you it is much worse. Words don't do the experience and the feelings justice.
Fortunately, Lucy is about 19 months out from her transplant and has been in full remission since February 2015. It's a tribute to a lot of factors, including the amazing advancements made in medicine and research thanks to organizations like The Leukemia & Lymphoma Society (LLS).
A FACE ON THE BILLBOARD
“She was featured on several billboards throughout St. Louis as part of LLS' Moms in Training program,” said Josh. “Kind of surreal to be driving to the hospital that she’s staying at and, on the way, pass a billboard with her face on it.”
It was the Bacott's first interaction with the organization, one that they remain closely tied to today. Thankfully, Lucy Bacott's face has become the face of another survivor who has benefited in part from the generosity of people. Charitable donations from businesses, friends or individuals go a long way.
“I’ve been friends with the Bacott's since college,” said Joe Bayer, Jr. “When friends have their world turned upside down, you always feel a sense of duty to support them. I couldn’t be happier with my decision after learning the value of The Leukemia & Lymphoma Society and what it does for patients, research, and the families.”
Bayer is the Executive Vice President at First Integrity Mortgage Services, headquartered in St. Louis. His experience with the Bacott's and LLS led to First Integrity donating its quarterly contribution to the organization early this summer.
“One of the neatest things I've seen is the people,” said Bayer, Jr. “The individuals and families affected by leukemia or lymphoma are smothered with warmth and love from other families. They are their own support group. It's truly amazing!”
Through financial donations from individuals and businesses like Bayer, Jr. and First Integrity, LLS has altered the outlook for blood cancer patients. The survival rates have tripled and in some cases quadrupled since the organization's inception in 1949.
“I think the biggest benefit that we see from the organization comes in the form of medical and technological advancements that they help fund,” said Bacott.
“During Lucy's three years of treatment at three different hospitals, we saw and experienced multiple treatments and drugs that likely weren’t available five years ago. Treatments like the immunotherapy clinical trial she participated in are the kind that the LLS seeks out and sponsors in the early phases. They are critical to the ongoing progress against blood cancer,” said Bacott.
The numbers back up the advancements.
Rich Sloan, Director, LLS Gatway; Joe Bayer, Jr.; & Debbie Kersting, Executive Director, LLS Gateway
In 2016 alone, LLS invested $49.3 Million in cutting-edge research.
LLS also distributed more than $40 Million in co-pay assistance in 2016 and provided separate funding for travel assistance to blood cancer patients with significant financial needs.
Rest assured that when you get that email, letter in the mail or text from that friend or cousin asking for a donation to LLS, you now have context.
When you hear or see Lucy's story – and the countless others like her's – the context is personalized.
FROM BILLBOARDS TO BIKE RACES
In 2016, Lucy was asked to be the honored hero for the Gateway Chapter cycling team for their 100-mile bike ride in Lake Tahoe, known as “America's Most Beautiful Bike Ride”. Together the team raised over $120,000.
“With that money raised from the bike ride, we were able to dedicate a research portfolio for pediatric blood cancer in Lucy’s name and stayed in touch with people from the team and LLS throughout the year,” said Josh.
That experience turned Josh into a cyclist at the 2017 ride in Tahoe. With just a few months notice, no cycling experience, and no teammates, Bacott enlisted in friends and family. Naturally, he reeled in his college friend, Joe Bayer, Jr.
Collectively, the team raised over $100,000 at the 2017 event, and every member of Bacott's team completed the 100-mile ride in Tahoe.
Lucy with Daddy at the 2017 Great American Bike Ride.
“Seeing people from all over the country, all with different stories to tell of how they’ve been impacted by blood cancer, come together to raise money and participate in an event like that is pretty inspiring,” said Josh.
“Needless to say, we’re signed up again for 2018.”
What about Joe Bayer, Jr? Does he have another bike ride in him?
“Oh yeah, I'm definitely riding again,” he said. “Now I'm the one who won't stop bugging people to sign up and ride for the cause.”
And Lucy's story continues beyond billboards and biking.
You can learn more and sign up for America's Most Beautiful Bike Ride right here.
ABOUT THE LEUKEMIA LYMPHOMA SOCIETY (LLS)
LLS' mission is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. Since 1949, LLS has invested $1 billion in research aimed at helping all blood cancer patients live longer, healthier lives. Its research has been a driving force behind treatment breakthroughs for patients with leukemia, lymphoma and myeloma.
First Integrity Mortgage Services is an independent, mortgage-banking firm. Buyers, Realtors(R) and loan officers have all come to trust the precision of the First Integrity system. Over its history, First Integrity has lent billions and served thousands of satisfied clients.
ABOUT AMERICA'S MOST BEAUTIFUL BIKE RIDE
June 3, 2018 at Lake Tahoe, NV. This ride provides cyclists of all ages and experience levels with breathtaking views of Lake Tahoe and its surrounding wilderness. The ride features multiple distance options – including 50, 62 and a 100-mile option that takes riders to historic Truckee before descending back into town. Every rider has access to numerous rest stops and event support for an outstanding ride experience. To sign up, donate or learn more information, visit the Team In Training site.